Tag: children

Original article by Sarah Zogby republished from Common Dreams under Creative Commons (CC BY-NC-ND 3.0). 

If anyone celebrating this attack against transgender people were to spend time with the parents, children, and doctors affected, their feelings might change.

President Donald Trump’s executive order prohibiting any hospital that receives federal funds from practicing gender-affirming care callously disregards the needs of children who are both gender and neurodiverse, putting them and their families at risk. If anyone celebrating this order were to spend time with the parents, children, and doctors affected, their feelings might change. They should meet Pearl who before receiving treatment was failing out of high school, contemplating suicide, and rarely left the house, and is now attending community college, teaching herself another language, and has developed deep friendships. Or the mathematically-gifted Ellen who after two deep depressive episodes in the last three years, finds safety, companionship, and stability in her gender support group. Or Jacob, a role model to all that meet him, who is attending college out of state and just performed in a concert on campus.

For three years my husband and I have been part of a support group with the parents of these children, who range in age from 14 to 25. Many are now scrambling for information to determine how far the order extends; where one can continue to receive care; what care, if any, the doctors they’ve trusted, relied on, and put faith in for years can still provide. Parents are counting prescription refills, checking if pharmacies will still honor them, searching for providers not impacted by the order, and compiling a list of states they could afford to travel to if other options don’t materialize. Some fear the order will destroy their children’s delicate mental health. Others fear it is a death sentence.

Our “community” includes some of the most thoughtful and loving caregivers I have ever known. Our children, who all have autism spectrum disorder (ASD), see and experience the world through a different yet remarkable lens. While some focus on their deficits, we see their creativity, honesty, strong sense of justice, loyalty, and enhanced focus as superpowers. But none of us deny that what makes them unique also presents challenges, including struggling with social interactions, poor executive functioning skills, or developmental delays. One challenge they all share is dealing with their gender diversity.

These are parents not boogeymen. These children are lovingly cared for and listened to, not abused.

Those with ASD are three to six times more likely than the general population to be gender diverse¹—the umbrella term that includes non-binary and transgender. On top of their social, developmental, or communication issues, the added stress of feeling uncomfortable in their own bodies deeply impacts their well-being. We often talk about their “dark periods” when they’ve experienced debilitating depression, suicidal ideation, and elevated anxiety. Like any good parent, we sought advice from trusted medical professionals who provide the standard of care supported by leading medical organizations, including the American Medical Association and the American Academy of Pediatrics.

Our children see a multidisciplinary team of fully licensed, board-certified, highly trained pediatric specialists at a world-renowned hospital. These neuropsychologists, psychiatrists, gynecologists, and social workers coordinate care plans tailored to each child, considering their unique developmental, mental, and emotional health needs. Every child is evaluated regularly over extended periods of time. The medical care they receive may include mental health treatment, executive functioning courses, and in-person or online groups where they play games like D&D and socialize with like-minded youth. Some children who are past puberty receive hormone therapy after an extensive evaluation process. No child under the age of 18 is provided with gender-affirming surgery.

Parents in our group run the gamut. Some struggled to accept their child’s gender diversity or ASD diagnosis. Some oppose using hormone therapy, despite their child’s repeated demands, because they believe their child couldn’t handle the responsibility. Some have once needed to hospitalize their suicidal children, but have watched them flourish since starting them on hormone therapy. All struggling and questioning. But no care decisions are made without extensive consultation with their doctors, whose paramount concern is that our children are happy, healthy, productive, and thriving.

My child does not receive hormone therapy or other treatments outlined in the order. I do not, cannot, fully understand the magnitude of their pain. All I can do is stand witness to this action’s cruelty. These are parents not boogeymen. These children are lovingly cared for and listened to, not abused. These doctors have dedicated their lives to improving the mental and physical health of some of the most vulnerable among us. They are saving them, not experimenting on them. We are all good, intelligent, informed, and, now, scared people, whose greatest concern is the welfare of our children.

Editor’s Note: To protect privacy all names and identifying details of those mentioned in this piece have been changed.

Original article by Sarah Zogby republished from Common Dreams under Creative Commons (CC BY-NC-ND 3.0). 

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dizzy: I have somehow managed to post this to the non-current version of this site. There are 2 versions atm because I have changed my web host and DNS needs to propogate so that it all points to my new web host.